Remembering the moments that matter most
Simple ways to plan for big family days and hold on to what happened
Safety Behind the Wheel Foundationdrivewithcare.org
Last reviewed:
For survivors and families13 min read
Your granddaughter is coming to stay for a week. Your son graduates in June. The whole family will gather for the holidays for the first time since the crash. You want to be there for all of it. You may also be afraid that a month from now, the day will be gone.
That fear is common. In a 2020 Headway survey of more than 2,000 people affected by brain injury, 70% said that recalling personal memories was a struggle for them. The survey gave a wedding day or a child’s birth as examples [1].
This article is about getting ready for the big days still ahead. You will plan the day so you have energy to enjoy it and pick a few simple ways to capture it. Then you will make something your family can look back on with you. A photo or a note cannot promise that the memory will come back. It can still give you the story of the day, and for some people it brings back pieces of it.
Why big days slip away, and why planning helps
After a brain injury, new memories are usually harder to form than old ones. Learning and recalling recent events tends to be hit harder than memories from years ago [2]. Why can I remember years ago but forget yesterday? goes into the reasons.
Big occasions add extra strain. They are often loud and full of new faces, and taking in too much at once makes learning harder [3]. Holidays, travel and busy places are common triggers for fatigue, and fatigue makes memory problems more noticeable [4]. Crowds and last minute changes of plan can raise stress as well [5]. So the days you care about most can be the hardest to keep.
Planning helps in two ways. It protects your energy, so you can take part and take in more of the day. It also sets up a simple way to capture what happens. Leaning on photos and notes will not hold back your recovery. There is no evidence that outside memory aids slow it down, and writing things down may even help a memory stick [3, 2].
Before the day: make a simple capture plan
A week or so before the event, sit down with someone you trust and make a short plan. Keep it to one page.
- Choose a few moments to keep. Pick three to five things you most want to hold on to. That might be the candles, the walk across the stage or the first hug at the airport. Trying to save everything usually means keeping very little [3].
- Pick tools you already know. A phone camera, a voice memo app, a small notebook or an envelope for keepsakes can all work. Cameras, photo albums and voice recorders are all on Headway’s list of everyday memory aids [6]. Choose what suits your hands, your eyes, your budget and the devices you used before the injury [7]. The week before a big event is a poor time to learn a new app.
- Ask for a capture helper. Ask one person to take photos, include some with you in them, and send them to you that evening. People find a clear, specific request easier to say yes to.
- Plan your energy. Rest the day before. Do the most demanding part earlier in the day if you can, plan breaks, and keep visits shorter if they wear you out [8].
- Plan a way out. Find a quiet room ahead of time. Agree on a signal with someone, like a hand squeeze or a short phrase, that means you need a break [9].
- Plan the ride home. Fatigue can make driving dangerous, so set up a ride for the trip home after a long day [8].
Comparison compiled by Safety Behind the Wheel Foundation
My event capture plan
| Plan item | Example: a grandchild’s visit | Your event |
|---|---|---|
| Moments I want to keep | Baking cookies, the bedtime story, the park | |
| How I will capture them | Photos with captions, one voice memo a day | |
| My capture helper | My daughter sends photos each night | |
| Energy plan | Rest after lunch, outings of two hours or less | |
| Quiet place and signal | The back bedroom, “I need some air” | |
| Keepsake | A drawing she makes for me | |
| Getting there and home | Not needed, the visit is at my home |
If you want the host or guests to know about your memory, you decide how much to say. Share only what you feel comfortable sharing, and it helps to have a short answer ready [9]. For example: “I had a brain injury, so I take a lot of photos. It helps me hold on to things.”
On the day: quick ways to capture what happens
Each capture should take seconds, so you can get back to the people you came to see.
Photo with a caption. Take the photo, then add a one line caption soon after that says who, what and why it mattered. “My grandson, 7, blowing out his candles. He asked me to help.” Headway’s tips include snapping phone pictures of daily events so you have something to look back at [10]. The caption turns a picture into a story you can follow.
A short voice memo. Step into a quieter spot and talk for 30 to 60 seconds. Say where you are, who is there, what just happened and how you feel. If other people’s voices will be on the recording, ask them first. Getting permission before you record is a good habit [11].
A small keepsake. Pick up one object, like a program, a ticket stub, a place card or a child’s drawing. Put it in an envelope and write the date and the event on the front.
Ask family to add their own pictures to one shared album, or to send them all to one person.
Set a limit so capturing does not take over. Once your chosen moments are saved, put the phone away and enjoy the rest.
If noise or bright lights become too much, take a break. Sensitivity to light and noise is a common symptom after a concussion [12]. A few minutes in a quiet room, slow breathing or music in your earbuds can help you settle [5]. Stopping before you are exhausted makes it easier to enjoy the rest of the day [8].
Get help right away
Feeling worn out after a big day is expected. Sudden confusion, new weakness or numbness, trouble speaking, a seizure, or a severe or worsening headache means call 911 or go to the emergency room right away [12]. So does vomiting more than once [12]. Print our red flag checklist and keep it with your plan.
The same evening: a five minute recap
Before bed, spend five minutes with someone who was there. Look through the photos, pick your favorites and tell the story out loud. Then write a few lines or record a short memo. Describing an event in your own words is the kind of active effort that memory guidelines encourage [7]. Writing it down will not weaken your memory [2].
Checklist from Safety Behind the Wheel Foundation
Same day recap
- Date, place and name of the event
- Who was there
- The best moment, in a sentence or two
- Something funny, surprising or touching
- How I felt
- The one photo I want to print
- Anyone I want to thank
If you are too tired, record a one minute memo and finish the rest tomorrow. A rough recap still gives you something to work with.
Make a one page highlight card
A highlight card pulls the whole event onto one page. Use a sheet of paper, an index card or a page in your planner, and put these on it:
- The event, date and place at the top
- Two or three printed photos, each with its caption
- Three to five short bullet points about what happened
- Something someone said that you want to keep
- A line about how you felt
Keep the cards in a folder or binder by date so they are easy to find. Some people put the newest card on the fridge for a week.
Then come back to it a little at a time. Short looks spread out over time tend to work better than one long session [3]. You might look the next day, a few days later, then after a week and a month. For more on why spacing helps, see Can spaced practice help you remember after brain injury?
What happens next varies. For some people, a card brings back bits of the day. For others, it becomes a familiar story they know from reading it many times, and they can still share it with the people who were there.
How family can help without pressure
Family and friends are often the best memory aids a survivor has. Survivors quoted by Headway describe the people around them as their biggest help [10]. Brain injury guidelines also say family members should learn to use memory supports alongside the survivor [7].
Ways to help:
- Offer to be the capture helper, and send photos with captions the same night.
- Share the story together. Instead of “Do you remember Saturday?” try “Here are Saturday’s photos. Look, there he is with the cake.”
- Leave room for the survivor’s part of the story, and let small details go uncorrected.
- If the story comes up again, enjoy it again. Each retelling is another visit to the day.
- Keep photos and cards in one shared place, so everyone uses the same system.
In one trial, adults with severe brain injury who trained alongside a regular conversation partner had better everyday conversations than those who trained alone [13]. The partners learned to draw the person out and let their abilities show [13].
For more ideas, read How families can help without constantly testing someone’s memory. If a forgotten special day has led to hurt feelings, I forgot does not mean I do not care can help you talk it through.
When the memory does not come back
Sometimes you will look at a photo and nothing feels familiar. That can hurt, and it can feel like proof of what the injury took.
Give that feeling room. It makes sense to grieve a day you cannot recall. It may also help to hold on to what the card tells you. The day happened, you were there, and the people in the photo were glad you came.
Memory skills can keep improving after an injury, but a day that was never stored may not come back, and no treatment can restore it [3]. Your family’s memories of the day still count. When they tell the story, the moment stays part of your shared life, and many families come to enjoy these retellings for their own sake.
If grief or low mood about lost memories stays with you, talk with your care team or a counselor who knows brain injury. If you ever have thoughts of ending your life, call or text 988 for the 988 Suicide and Crisis Lifeline, which is open around the clock [14].
Keep it private and fair to others
- Ask before you record someone’s voice or video [11].
- Ask parents before you take or share photos of their children.
- Decide who can see your memos and highlight cards. They belong to you.
- Back up the photos on your phone, so a lost or broken phone does not take them with it.
- Think before posting online. A private shared album is often enough.
Questions to ask your care team
Question checklist from Safety Behind the Wheel Foundation
- Which capture tools would suit my memory, my vision and my hands?
- Could an occupational therapist help me set up photo captions or voice memos on my phone?
- How should I pace myself for a long event like a wedding or a trip?
- Is it safe for me to drive to and from events, or should I plan rides?
- How often should I look back at my highlight cards?
- Can someone show my family how to support my memory without quizzing me?
- I feel sad when I cannot remember special days. Who can I talk to about that?
Frequently asked questions
Can photos help someone with memory loss remember an event?
Photos can help you look back on an event, and for some people they bring back parts of it. Taking phone pictures of daily events to look back at later is one of the tips Headway gives [10]. A short caption and a few return visits over the next weeks make a photo more useful.
How do I prepare for a big family event after a brain injury?
Plan your energy and your capture tools about a week ahead. Rest before, plan breaks and a quiet room, and choose a few moments to capture [8, 4]. Set up a ride home if you will be tired.
Is it okay to record a family gathering on my phone?
Yes, as long as the people you record agree. Ask before you record voices or video [11], and keep recordings private unless everyone is happy to share them.
What if I cannot remember a special day at all?
Your record still tells you what happened and that you were part of it. Grief about a lost day is normal. If it stays heavy, talk with your care team or a counselor.
How can I help my partner hold on to our special days?
Offer to take the photos, send them with captions the same night, and look through them together over the next few weeks. Tell the story with your partner and skip the “Do you remember?” questions [7, 13].
Should I take notes during an event or just enjoy it?
You can do both by keeping capture short. Save the few moments you chose, then put the phone away and let your helper catch the rest.
The bottom line
Recommendation from Safety Behind the Wheel Foundation
Pick one big day coming up and make a simple plan this week. Decide which moments you want to keep, who will help capture them and how you will protect your energy. On the day, take quick photos with captions. Recap that evening, then make a one page highlight card to revisit over the next month. The memory may or may not return, and the card keeps the day within reach for you and your family either way.
Related articles
Sources and further reading
- 1Headway. “The impact of memory loss on people with brain injury.” Headway, the brain injury association (UK), 2020. headway.org.uk/…/the-impact-of-memory-loss-on…
- 2Hart T, Sander A. “Memory and Traumatic Brain Injury.” Model Systems Knowledge Translation Center (MSKTC), 2016. msktc.org/…/memory-and-traumatic-brain-i…
- 3Wilson BA. “Memory problems after brain injury.” Headway, the brain injury association (UK), 2022. headway.org.uk/…/memory-problems-after-brain-…
- 4Headway. “Fatigue after brain injury.” Headway, the brain injury association (UK), 2024. headway.org.uk/…/fatigue-after-brain-injury-p…
- 5Zwilling A, Sander A, Hanks R. “Changes in Emotion After Traumatic Brain Injury.” Model Systems Knowledge Translation Center, 2022. msktc.org/…/ChangesinEmotionAfterTBI-508…
- 6Headway. “How to manage memory problems after brain injury.” Headway, the brain injury association (UK), 2026. headway.org.uk/…/how-to-manage-memory-problem…
- 7Velikonja D, Ponsford J, et al. “INCOG 2.0 Guidelines for Cognitive Rehabilitation Following Traumatic Brain Injury, Part V: Memory.” Journal of Head Trauma Rehabilitation, 2023. Summary via ASHA Evidence Maps. apps.asha.org/…/63979679-1191-ed11-8141-0050…
- 8Model Systems Knowledge Translation Center. “Fatigue and Traumatic Brain Injury.” MSKTC, 2024. msktc.org/…/fatigue-and-traumatic-brain-…
- 9Benfield E, Teague C, Moadab N, Hanks R. “Talking to People About Your Traumatic Brain Injury.” Model Systems Knowledge Translation Center, 2024. tbi.washington.edu/…/Talking-To-People-TBI-508.pdf
- 10Headway. “How to cope with memory problems after brain injury.” Headway, the brain injury association (UK), 2026. headway.org.uk/…/how-to-cope-with-memory-prob…
- 11American Institutes for Research and Model Systems Knowledge Translation Center. “Managing Memory Problems After Traumatic Brain Injury (TBI).” Infocomic, 2024. msktc.org/…/Infocomic-MemoryAfterTBI-508…
- 12Centers for Disease Control and Prevention. “Symptoms of Mild TBI and Concussion.” CDC, 2025. cdc.gov/…/signs-symptoms
- 13Togher L, McDonald S, Tate R, Power E, Rietdijk R. “Training communication partners of people with severe traumatic brain injury improves everyday conversations: a multicenter single blind clinical trial.” Journal of Rehabilitation Medicine, 2013. medicaljournals.se/…/16501977-1173
- 14Substance Abuse and Mental Health Services Administration. “988 Suicide and Crisis Lifeline fact sheet.” SAMHSA, accessed 2026. samhsa.gov/…/988-factsheet.pdf
This article reflects the safety priorities of family therapy, occupational therapy and brain injury rehabilitation. It is general education, not medical advice. Check with your care team and official sources about your own situation. Reviewed October 2026.
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